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Home My WebLink AboutDocumentation_Regular_Tab 01_05/12/2011 I � �11 I� � 1� � 1 �G � �� ` � i � i �/\ � i� �� i�.� ,.� �i ,; �� i li � � � �' ,i/'.. � ��` i�� ,A Aa �; �V� ��'�'� � � ��%% i �- �_. ;,�`y � 9 _-� �,i a.,, ,� � "1 ��i e � - � �� !I �� i I`•-`i � � '� i 1 , L �: � } I - � �� ',';'' �� C`��s�� , � � ,� �,:� � �.�r�� , ;� , � � :al �� i, _`- '�' - �� +�� ., � „ ,r� � \ � �� YS � /' � ; \\ � � � i �Declaring �Kay, 2011 � � �, _- JV'euro�6roma•tosis (9V'�')Awareness �Konth _ -� �i(.: � '' `� `'`� 's' ,�Nhet'eas, N�' causes tumors to grau� on nerves anywhere in tFie 6ocCy, 6one anrCskin tumors, done I ' �"�_ de for►nities sucFi as spinaC scoCiosis; Ceg 6owing or twisting, ca fe au lait spots on tFie -� ,;,; ��'' � \ - �,� , ,� ' i skin, deafness, 6Cindness; Cearning d'�sa6iCities; de6i�tating pain, heart clefects ancCeven I., � deat(� and i - � - �� - i �,, ` ,. `W(zereas, N�F is more �revaCent tFian Cystic Fi6rosis, �uckenne MuscuCar 1�7ystrophy, 7ay Sac(zs ��_� ancC�funtington's I�isease com6inecC,• ancf � % ; ' , `�. - `�:,,, ,��Nkereas, �V�F' can appear in any famiCy and' is worldzvicf'e in cf'istri6ution, affeets 6otFi se.�es equaCCy and /'ias no particular raciaC or etFinie distri6ution; and 8S% of cases are __ � �, ; �`: ; sporacf"u (no previous famiCy Fiistory) and 15% are inherited,• and �'� ��. ,.� -� :_.�:.,��"' � � :- `Wl�ieteas, �N(zile over 120,OOO,Americans (rave .7V'�F and one of every 3,000 new6orns wi�CcfeveCop - %;%� �� tfie d"zsorder it stiCCi.s relativeCy unknown to tFie pu6Cic ancfmuch remains to 6e done to =''�. ��, . _ ,.,; ��`' raise awareness of 9VF''s devastating effects anif tFie need for fundina for researcFi to _ - prevent, treat ancCcure N�; -_ %;' � `Wkereas, 2Tie ChiCdren's 7umor �F'oundation (r�yu 800 Ceacfs t(ze efforts to �� fund criticaC researcFi aimecl' at finding tke causes of tFie cf'z.sorder and cCeveCoping - �; �. Y'' � treatments and a cure, and to provide support to peopCe and famiCaes affected dy �V�F; �\` � � Q � � �=� `' ", �Nftereas, 9V�F' researcFi 6ene�`its an acfcfitionaC 100 miCCion Americans (i. e. 6S million with cancer :��,\ . � _��,��r�� %= and 35 miCCion witFi Cearning dtsa6iCities; and - � - �� 4N�iereas, 7�ie CFiiC�ren's �I"umor �F'ouncfation is odserving �41ay as NationaCNeurofi6romatosis �\ � ,�� `'�'"� (9V�F').,�wareness �lontFi nationaCCy to inform t(re pu6Cic a6out t(�is common genetic �' �' --,;;�: disorder, �' � �� ., \ � �� Naw 7rerefore, I, 7om r1'aterno, �layor, in recognition of this important initiative, cfo Fiere6y procfaim __ d i, '' t(ze montFt of 9Kay, 2011 as ;;;:�\ �; � r �,. � � �� ` '_ °Neurofi6romatosisAwareness �lonthA — , � z' �, ��,,, ;� �'� � In tFie �ilrage of 7equesta, and urge our citizens to join the CFii(fren's 7umor i �` � , � �Foundation's effort to increase awareness of t(�e importance of finding a treatment � -� `� ancfa cure to ��F. �• �� ' (� , r t� // �� f G �� , � � , f,� �IM�TDx � ,F ` � � ,�� d ��PS'�: � � "� � 4 =� ' O � - � 4 i ��, co t � ` a„ �il1u�P (t�lsrk �3:� _ -_ � � � � ,; ` � Y � p , / � .� .. ' y �� ' — ��4" � 'f4� �" �� . � '�� .� {�,I � � . \ l i t � ° I \��' _ �I� ' � I � \\ ��. I y �� ,ty� I� � ��'' � 5 , I �" � I ��', I \-. � 1� � � .�\� n I � ��, I� l�� l] �.' �„ ��i)ASL �w �1��1�'� � �1.a---.�� u_l� '��` c�ll �'JJII\ ��t'.� ��U C:rd